Tuesday, October 30, 2012

Autism and Gender, Tomboys and Engineers

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I read this fascinating article by Simon Baron-Cohen and I want to share paraphrased excerpts that amuse and enlighten me.
The genetic component...children and grandchildren of engineers are more likely to be autistic.
My grandfather And my great-grandfather were both engineers.
Systemizing-the passion to analyze and construct systems, whether mechanical (automobiles, computers, rocket or weapon technology), natural (health, running, weight training, dietary), political or social (utopian societies, communal communities, public welfare systems)
All systems follow rules. When you can systemize, you identify the rules that govern the system so you can predict how that system works. The fundamental drive to systemize may explain why autistics love repetition, patterns, predictability and resist unexpected changes.
I remember in sixth grade designing a utopian world where everyone was equal, wore the same clothes, all jobs paid the same, all homes identical, etc. I designed kennels whereby all puppies were equally fed and attended to. My Aspie son works on a more global scale designing fleets, systems of new, improved technological armies and navies, green technologies, improved political systems, among other things.


A study was conducted in which children with Aspergers outperformed older Neuro-typical kids on a test info understanding mechanics. Aspies also scored high in attention to detail. Attention to detail is necessary for systemizing. When trying to understand a system, it is essential to be able to spot the small details or if you mistake one tiny variable (imagine building a bridge with one miscalculation near the base). Both parents also tested higher for attention to detail.
Not only engineers, but other technological people's may harbor the autism gene. In one study, math students were nine times more likely than humanities students to be autistic.


If genes for technological aptitude are linked to autism, then autism should be higher in technological communities, like Silicon Valley, which some claim has autism rates 10 times higher than the general population.
On a slightly different note, autism is more common in boys. Classic autism 4 boys to every girl. Aspergers 9 boys to every girl. Strong systemizing is much more common in men. Likewise, in childhood, boys have a stronger interest in mechanical systems (toy cars) and construction systems (Legos). As adults, en are over represented in science, technology, engineering and math). Maybe high levels of testosterone in the fetus contribute to strong systemizing.
A study of over 200 amniocentesis, found that the more testosterone surrounding a fetus, the stronger the child's later interests in systems, better interest in details and higher autism traits.
If true, women with autism should be especially masculinized in certain ways. Girls with autism show tomboyism in toy choice preferences. I, myself, have always had a plethora of masculine traits and consider myself androgynous.
"People with autism, whose minds differ from what we consider typical, frequently display both disability and exceptional aptitude. Genes that contribute to autism may overlap with genes for the uniquely human ability to understand how the world works in extraordinary detail-see beauty in patterns inherent in nature, technology, music and math." Thanks Simon:)

Photo

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Ahh, I just installed BlogPress and am checking to see if it works. Yes! I am so visual. I'm thrilled to be able to include pics!!!



- Posted using BlogPress from my iPad

Anchors and Aspergers

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An Aspie Anchor: someOne or someThing that can be trusted, helpful, grounding and provide a source of stability, comfort and reason, whether in person, memory or fantasy


I've had this theory that every Aspie needs at least one outside person who is an anchor.
Throughout my life, it's been a mixed bag. Sometimes I had an anchor, many times not. An anchor is probably the greatest...resource and assistance for an autistic to navigate the challenges of everyday life and functionality.
Autistics without any anchor...well, it makes me very sad...you know, seeing them flounder in the raging waters, hiding in closets, self-abusing, you get the picture. I call anchorless autistics "Orphan Aspies". It's oft a confusing, needy, unsure way to live.
I know, my words contine to befuddle me and come out kinda tilted.
An Orphan Aspie is sometimes...directionless, chasing red herrings and unable to focus. Like that damn inner compass that NTs are gifted with is completely missing. It's hard to figure out the big things from the little things.
I consider myself...somewhat adrift, these days. I think I have a partial rudder and the steering works on some days.
I used to have.....a few reliable anchors. Lately, in this storm of chaos, I barely have one, maybe.


I've been turning more from the people anchors to item anchors, as they seem more hardy and trustworthy. Things never let you down, don't talk back and can't ignore you. Yeah, they hurt less right now.
My bio family has fallen away, again. And I can't fathom ever seeing or being near any of them again. Friends have retreated into autumn and warm fires at the hearth. Those who I used to...count on...fell down, got busy, turned away. So be it. I ant sit and whine. Everyone has to live their own life.
I do consider myself to be in a...better place whilst half-anchored. I don't think this rope will break as I'm tossed to and for. Complaining, whining, really doesn't get one anywhere and serves little purpose.
It's just the way it is. I'm fine.

On Being a Loner

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I'm not sure if being a loner is a choice or a necessity. Interacting with people just hurts too much. Betrayal is rampant...like you thought that pit bull was chained up but now suddenly it's running loose.
Trust is breaking and shards of glass rain all about...I hate that sound.
At least when Im alone, someone listens to me.
By myself, my dreams and fantasies are richer and more entertaining than any real life drama or play.
I'm no longer invisible to myself. I see and value who I am.
My words continue to stumble and fall, like an errant toddler chasing the bouncy ball.
When I'm alone, I don't have to pretend to pay attention or work to maintain eye contact, try and analyze expressions or search for the meaning of what someone is really trying to say.


I don't have to put up with pretenders and empty words either.
When I'm alone, the world slowly revolves around me and I am at the center of my universe.
By myself, solitary...is what I've always been and probably what I always will be.
No one can hurt me if I keep them all away. Guess I'm still feeling pretty wounded.

and Never Go Shopping After Therapy

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After therapy today, I had a small list of groceries to be got. Since one of the items was an ingrediant in my lunch, I had to go. Whilst I much would have preferred to go home, take Motrin and crawl into bed, the grocstore was a must see.
As I mentioned, therapy was particularly stressful and I found myself doing a little retail therapy. In addition to the much needed food stuffs, I picked up: a dark purple flowering African violet, not 1  but 2 sets of $1.09 multi-colored cowboys and Indians plastic figures And a bic lighter because it  had the cutest tiger on it. They really seemed to be necessary items at the time.
When Younglink arrived home from school, he saw my plastic figures and promptly asked if we could engage in battle. I accepted the challenge. We set up a battlefield and took turns trying to cause serious demise to our "guys". Whilst Younglink used the catapult and magical spear, I utilized the tactics of hurling a buffalo skeleton at his camp And stacking the...wounded carcasses into a pile for hiding. Then, YoungL brought Batman in to take out a handful of warriors. Hmm. I figured I needed supreme help and enlisted Yoda to use the force and levitate that catapult away.
Whew, it was quite a battle.
Anyway, shopping after therapy..fun, but not recommended:)

Therapy, Feeling Helpless

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Today was another revealing and rather..rough therapy session. I spent the hour regaling in the subject of feeling helpless which goes way, way back to when I was debilitated, for hours every single day in my manacled and stifling foot brace. I had no control and my body, from the waist down, was forced to endure rather horrid pain as the brace attempted to contort and align my hips, legs and feet.


I was an embarrassment to my mother...as an Aspie extends her identity through her possessions, my mother identified herself through her children. Being born unperfect and requiring "correction" was a huge blemish. Mom couldn't deal. My brace was adhered on, of course, I cried at the pain, and my mother left the room, shut the door and left me alone for hours each day.
Whenever she looked at me, it felt as though I was a painful reminder of her failure to produce a healthy child. So, she turned away or put me alone in my room. It hurt her to look at me.


My mother, to this day, refuses to say more than a sentence or two about the doctor visits, two different braces, my club-like left foot or hip dysplasia and subsequent hip braces. My mother is a king of denial. After all, if we don't talk about it, it doesnt exist or it didn't really happen. That's my mom.
I remember laying in my bed, for what felt like, an eternity. I had a couple blankets and a toy or two to amuse myself and interact with. I learned to disassociate very early as I did everything I could to escape the endless confinement of feeling helpless and trapped in a painful body and neglectful household.
Oh, the places I'd go!


Anyway, so I am working on awareness and reintegrating these early experiences. I think I was so pissed off last week for a number of reasons, but the feelings of being defenseless and helpless stand out brightly in the shade. D and H were the prevailing, reoccurring themes throughout the entire week. And feeling helpless, invisible and disrespected Again, put me in a terrible, shut-everyone-out-you-no-good-bastards kinda mood. I'm tired of being overlooked, trampled upon and hurt by neglect and deliberate actions.
The cheese stands alone.

Sunday, October 28, 2012

Apparently, I'm in a bad mood

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I guess it's obvious. I continue to deal with extreme fatigue, must be going on two weeks or so. I'm not sure the tiredness is from the Lyme, the emotional chaos or Autumn. Maybe a bit of all three.  I am tired all the time and have to make a hearty effort to drag my sorry ass up out of bed and move. I've been calling myself a trained monkey....doing all the mom and household things that need to be done regardless of how I feel. I feel like doing nothing, but sleep. When I rest or nap, I quickly fall into the most heavy slumbers...and I just want to stay there.
My energy level hovers between 30-40%.  My patience and tolerance of stupid is even lower. I just work on staying out of the fray, avoiding people and stress and completing the basic functionality tasks that are required.
I continue to be perturbed by that damn school meeting last week...mostly because it mimics that bad visit at the hospital. Seems like its okay to throw me under the bus...not consider me at all...and business as usual.
Hate and anger seem to show themselves a lot. I'm so mad at my stupid, wishy-washy mother who, once again trashed me to save one of her precious sons. Did I mention that she has always adored her sons and barely tolerated her daughters? Every one of her five daughters ended up in at least one abusive relationship. Moms boys could do no wrong...she was always very clear about that.
In regards to my feelings of defenselessness and my autism, I'm thinking the best bet, to avoid hurt, is to keep my mouth shut, my thoughts and opinions to myself, not ask, not tell and expect nothing.
Seems reasonable...fairly safe.
I must wear my hatred and anger quite well. People see me and practically jump to get away from me. Ah, the whole avoidance thing needs litte effort. Damn, I'm that good.
I gots to find me more things that are that easy.
I'm not sure when I'll feel "better", whatever that is. It could happen, but I'm not putting money on it.
It is what it is.
Still feeling pretty beaten up. Can't imagine anyone could wear a smile feeling like this.

I'm Done Believing

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That I will be first, second or third, in anyone's life but my own
That I am the only one who rarely sees outside of myself
That my needs and wants matter to anyone but me
That the confusion will ever end...it will always be there in varying degrees
That there is help, assistance outside of myself. I'm not looking anymore for things that don't really exist except in myth. If I can't do it, it doesn't get done
I'm done trying to fit in.
I don't believe that I will Ever be even marginally mainstream. I just don't care to try anymore.
I don't believe in the amount of work necessary to get people to understand me.
I no longer want to fit in anywhere, lost cause
I'm done with stupid wishes and dreams
No body speaks for me but me
I will not count on you, as you cannot count on me
Life is brutal, so what?


In almost fifty years, I've realized some things will change, some will not.
I'm at my limit. I can accept that.
I don't care what anyone else thinks or feels...we are even now
I am the only universe I know and understand
I'm done believing

Thursday, October 25, 2012

It feels like...

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I am walking naked, in a cold, shivering rain

I can see where I am continuing to give away my personal power. Seems like the old way of thinking is...if I give you my personal power than you will like me.
Aware of it. Working on changing the old pattern.

Embarrassment feels like hot, spreading fire directly in my solar plexus, stomach area. That's how I physically feel with that emotion.

Every time I entertain the thought that I believe in me...I cry

Sometimes I think the only sense of...satisfaction, excitement and passion that I ever feel is when I am actively pursuing my special interests.

My therapist told me that "doing nothing is doing something". I realize how I have spent probably most of my life "inactive" because I am processing, recovering or trying to just figure out the next best step.

I more often am convinced and starting to accept my inability to make an intimate connection with another adult...kinda acknowledging my abilities. My teenage career choice of being a monk or hermit rings true with my capabilities.

I want friends but I recoil because they can hurt so. The closer they are, the more intense the pains they cause.
Hmm, now I'm sounding much more autistic. Seems my Aspieness was somewhat latent for weeks. Back up and running.

I can remember and release some of the bad things that happened to me as a kid. Changing alll the patterns and behaviors my neglect and abuse contributed to is the majority of my waking therapy. Identifyin and becoming aware of the unhealthy behavior is first and oft the most difficult step. Because I live so isolated, it isn't easy to see what other, normal people think, feel and behave. Than I write or talk about it, followed by brainstorming and figuring out How to change. It's a full time job.

It seems people mostly fight against time. I'm learning to just stand, hands in pocket, and watch it whip by on the zip line with barred hooks. No longer do I run or chase it.

Ahh, me writing ability, which had been on hiatus for weeks, has returned. I've been seriously struggling with language and sharing for a spell.

I want to get back into some of my social routines. I need to be persnickety about my choices as I continue to feel vulnerable, fatigued and emotional. My companions and destinations need to be supportive and soft.

I think I'll send my dad some flowers. He needs to know that I'm thinking of him.

I have about four different projects slightly going on. Three of which are special interests. Not a lot of energy, so each day I do just a bit on one or the other. I continue to have great difficulty sleeping for a number of varied reasons.

I wonder how my friend Bob is doing.

Thanks for reading...be well



Polite isn't always right

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Sometimes my autism and delay in verbal processing makes me feel stupid and defenseless. I had a meeting at Younglinks school and the notice said four other school personnel would be attending. I looked over the paper, noting which parties I was familiar with and the one wild card, and mentally prepared my self.

When I showed up for the meeting, I was quickly introduced to Stranger #1 and asked, no, told that she would be attending.
Then as the other attendees arrived, someone invited Known Uninvitee #2. Now I was screwed.
In the first place, had I not been so darn polite, I would have quickly asked Stranger #1 to please leave. But, since the thought of humiliating someone so, goes against everything I believe in, I let it ride. I could have easily requested that Known Invitee leave as well. But no.


My only response to these unknown variables was typical....I shut down. I only spoke when necessary and spent most of my time staring out the window, wishing I had some control over this unforeseen mess and desperately wishing I could be somewhere else.
It wasn't until late that evening that all the delayed emotions surfaced. I was pissed at the meeting chairperson, who Knows I am autistic and does not adjust well to sudden, unpredictable changes and complete strangers. I felt she betrayed me and was disrespectful in her oversight. Yes, I'm still miffed about that one.
Secondly, I was mad at myself. Damned upset at the helpless feeling of being in an uncontrollable situation which I could not change. I felt Ambushed and bushwhacked. Had I not been polite, not autistic, and with a hint of self esteem, I would have requested a recess and a re "grouping".
The following morning, today, I contacted the meeting chairperson for a private meeting where I vented and stated my feelings. I was...am so insulted. I know the world is by its very nature unpredictable, but I expect respect, especially...if Only from those people that are Aware of what makes me uncomfortable And distressed!
Yeah, I'm still pissed.
Meeting chair took full responsibility for the "oversight" and apologized. She quickly understood her err.
At first, I thought I was making a big thing from a little thing, but no.....this is how I feel and it is justified.
Just another thing, another situation to be mentally prepared for when the next meeting comes due. Dammit

Wednesday, October 24, 2012

The Rude Aspie

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If I don't think before I speak...I have been known to say awful, rude things.
Case in point..someone asked me how my dad was. I said, "Well, he's dying, but other than that he's fine."
Okay, granted I woke up emotionally drained and extremely crabby. Plus, this was a friend speaking to me, in my own home. I talk differently, much more openly, than if I were speaking with someone outside my domain. I had zero censors on and I said, quite bluntly, exactly how I felt the question should be answered. Extremely rude and definitely Aspie.

Tuesday, October 23, 2012

I Don't Know How to Believe Me

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Accepting Innocence

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I am fiercely struggling to accept the recent admission from my dying father. I fight against ....freeing myself from the costume and mask that I have worn for over forty years.
The unknown..is scary.
I know full well the titles that I have carried and worn...they fit like an uncomfortable, scratchy glove. I understand That constant irritation.
Liar, storyteller, rabble rouser, attention seeker, black sheep, trouble maker....I have grown accustomed to these.
Now, quite suddenly and highly unexpectedly dramatically,....sigh....everything I have believed about myself...has been exonerated, turned tail upside down, cartwheels rolling speedily and haphazardly down a very steep slope, spinning and stripping me of what I once was. Naked down to the bare bone.
I don't know how to live like I am and always have been...innocent....and teller of truths. I don't know what it feels like to have someone else free me...to have someone believe me.
That my father would ever speak such words is the wildest dream and craziest of hopes. I did not expect it and I surely don't know how to accept it. How can the old world as I knew it suddenly break apart, fall away, diminish and vanish? What Am I then? Cause I have no clue. Forty some years of lies, beatings, beatins, callous and painful words hurled at me. That Anyone would believe me? That words would be said, for all to hear...that I did Nothing wrong...that the sins I covered myself in ...large nothing ....anymore.
Part of me, and maybe others out there, may seriously wonder....why it is sooooo hard to accept...this gift....
I don't know how to be Nothing of what I was...of what people told me I was.
Yes, my entire world...is changing...Dramatically, quickly and And completely put of my control. And I resist...because I am scared.

Friday, October 19, 2012

Many Battles, Many Fronts, Laying Low

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I ended up "going underground" after a disastrous week marked by confusion, miscues and loss after loss. I figured my safest bet was to lay low and stop all incoming. I deactivated Facebook, turned off my phone, shut all the drapes, accepted no phone calls and sought out no one.
My dreams are filled with frustration. I am in places I don't know and cannot find the normal, easy exit. Each time I must ask someone else to help me get out. I run for bunkers, bolt doors and perpetually have my fingers on my phone ready to call 911, in my dreams.
At the hospital, the second time, my dad wanted to talk more about the incest. A brother was there and flew into a rampage, pitching my belongings out into the hall, yelling and screaming for me to leave. My mother sat there, saying, "there is a time and place for everything, not now". She, my dad and my older brother have freely spoken about the incest...they neglected to inform angry brother. In the melee, mom, true to form, did not support me Or what my dad wanted to say...she protected angry brother...once more feeding me to the wolves. I was not informed that the "secret" that was now out, had only been shared with a select group of siblings. Not only did I pay the price but my ailing father was not allowed to say what he wanted. Thanks mom, you #%^+=.
No one had directed so much venom and anger at me in a very long time. I was completely unprepared, unarmed and had my guard down. It was ugly. I kept myself together, speaking in an even, normal...calm voice. I held my ground and took my leave when I deemed it appropriate.
The event, so painful and shocking, is easily enough to make me cut all further ties with mom and siblings, forever. I don't walk into hailstorms. And I avoid and protect myself first and foremost.
If my dad asks to see me, I will go.
I answer to no one but my self and my kids. I'm working on getting my life back and finding stable ground. I have returned to more pleasing pursuits. Since leaving Facebook and my iPad games, I suddenly have lots more free time. My tombstone will not read "she played a good game" or "avid gamer". I read books, cook and clean more, search the inet for my obscure obsessions and useless, but fun information, and I'm more available to my little guy.
I plan on staying active at church because it brings me peace ad happiness. I've cleaned out my closet and discarded that which is no longer needed. I also had to throw out my coat angry brother threw and the clothes I wore that day, as every time I saw them or touched them I was reminded of the anger and ugliness. I would have burned them in the fire pit but too much rain. I could not donate
them because of the risk that a local would purchase the clothing and I might see it around town.
I am calming down and sleeping lots. I'm doing okay. Things will calm down when things calm. I'm doing my best.
Be well

Thursday, October 18, 2012

More words from my father

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Visiting my father....he greeted me with happy, open arms. Two specific statements he made to me:
"it doesnt seem real"
"I don't know how I could have had those thoughts"
My dad expresses very deep remorse and regret. I make sure he knows I love and forgive him.
It may be the last time I see him.

Tuesday, October 16, 2012

A perpetrators confession...my father acknowledges incest

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My life Is beyond bizarre. I hear perpetrators actually acknowledging that they committed incest, sexual abuse, is Extremely rare. My father did just that. I'm not sure when or where, but he admitted to my mother and siblings that he had sexually molested me.



As I sat with my dying father, I forgave him and he expressed remorse.
The key to my chains has been handed to me. I still cannot process such information. For over thirty years I lived with the shame, pain, blame and secrecy surrounding my dads abuse. I wasn't called a liar to my face, but siblings and relatives certainly implied it.
I am not, nor have I Ever been a liar.
Hard for even me to believe that all my memories and nightmares Are most certainly True.
My dad talks about it. My mom talks about it. My brother asked me if dad asked for my forgiveness. My parents Together talk about what dad did to me. Holy fucking shit!
I felt like such a liar so long....I mean, it seriously damaged and questioned my self-worth.....I have to figure out how to accept all this...how to believe me. I Still have a hard time believing me And I was there And I've been talking about it And my father admits to it. That, my dear, is fucked up victim mentality that I have worn for way too long.
My dad has about six months to live. I want to visit him often, talk, bring presents, play cribbage and just spend time getting to know the non-sexual predator side of him.
What does my mother think? How do my siblings Now feel about me? I don't know...I just don't know...not sure that I care.....life is so fucking weirdy...mine anyway

Sunday, October 14, 2012

A surreal twist

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My life has taken a most bizarre, surreal twist. My parents who had vehemently denied their innocence and protested I was a liar...have changed their tune. In an instant...everything has turned around and upside down....The Truth, is what, I believe it's called....The Truth that I, in a bazillion years never thought I would hear...is screaming loudly and for all to hear.
Me: Dad, I forgive you, God forgives you and maybe sometime you'll be able to forgive yourself.  You are a good person who did some bad things...you made some mistakes..we all do.
Who the hell am I? Where did this compassion, that I never new I had, come from? (arms lifted to the sky)
For over twenty years, my parents have maligned me against them, all my siblings and most of my relatives.....but Grandma died, holding my hand...and I can easily forgive the cruel

Talking with my mother

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So I say, Mom, I told dad that I have completely forgiven him
Mom: Oh that is soo wonderful....
Me: and dad expressed remorse for what he did
Mom: I'm so glad...I thought it was something I did

My insane parents who were lost in denial have completely disappeared and been replaced by two people who Acknowledge Dad did Something to me he Shouldn't have.

WTF..who are these honest, remorseful people who can talk about my dads criminal incest even in slightly veiled terms?

Dad met with the priest for confession and sick rites the day before I visited. What dad did to me was probably the worst sins he committed in his entire life.
Making peace.
Dad asked me to visit many, many more times. My brother is working on getting all nine surviving siblings together for a family picture.
The visit the other day at the hospital is just one of many. I may even decide to step into the dreaded house of my childhood, that I have avoided for over twenty years.
Dads pneumonia is still out of control. When that gets better he may be discharged back to that house. There are enough siblings and spouses to help mom care for him.
I am under no obligation to go anywhere or do anything. I visited him because I had to...I wanted to...I needed answers.
I'll visit on my terms.
No one runs my life but me
I'm doing ok

Saturday, October 13, 2012

My father is dying

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Found out this week my dad is in the hospital with double pneumonia and stage four lung cancer. He has an inoperable tennis ball size tumor. The cancer has spread.
I drove two hours to see him yesterday. We talked. I told him I completely forgave him. He acknowledged the incest. He said remorse and regret. He wondered aloud how he could have ever done what he did to me.
He is not long for this earth.
I am completely and utterly exhausted.
Shutdown

Monday, October 1, 2012

MPD and Aspergers have some things in common

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AArchetype Home

Being Multiple in a Singleton World

by Lisa Featherston
Dissociative Identity Disorder (DID), otherwise known as Multiple Personality Disorder, is an elaborate and ingenious coping mechanism used and perfected, usually by a young child, in response to severe trauma. It was first described by Paracelsus in 1645, who wrote about a woman who had amnesia for an alter personality who stole her money. Despite this and numerous other accounts documented throughout history, Eberhardt Gmelin (1791) is usually the source credited with the first thoroughly documented case.
Controversy about whether this disorder exists has been common for as long as it has been documented; however, Multiple Personality Disorder was officially added to the DSM-III (Diagnostic and Statistical Manual of Mental Disorders, third edition) by the American Psychiatric Association in 1980. Since that time, much research has been conducted to better understand and treat this disorder.

The Dissociative Continuum

Every human being dissociates to some degree. Most people can recall a time when they realized or were told they were day dreaming; similarly, while driving down the interstate, you may have had the experience of being so engulfed in thought that you missed your exit. You were somehow still able to drive safely and operate the vehicle as usual but your mind was a million miles away. This is a form of dissociation. The difference between normal dissociation and that of dissociative identity disorder is that the latter is more extreme and deliberate and it originates as a mental way of detaching from an unbearable situation.
Oftentimes following a life-threatening situation such as a car accident or natural disaster, people seem to function in a daze and later report they don’t remember what they did or said. This is a more severe example of dissociation but unlike dissociative identity disorder, these people do return to a more grounded self-awareness and the dissociative states will dissipate completely. In DID, the child becomes dependent on these dissociative states and in a developing brain, these altered states become solidified fragments of the brain itself, thereby enhancing the individual personalities into self-functioning entities all sharing the same body.

Organization of the Internal System

Living with DID has been both a blessing and an enormous challenge. Growing up in an extremely abusive environment left me vulnerable and constantly on alert. Being able to depend on alternate personalities who were better equipped to handle certain situations proved useful and necessary. A thorough understanding of what it’s like to experience dissociation and ”switching” between alters might help people to better accept the disorder and appreciate the complexities of it.

Alters

The first thing to explain is the terminology. An alter is described as an alternate personality. Keeping in mind that all alters are parts of the whole, these alters begin as fantasy pieces created by the core (the person who was born of biological means); fragmentation of the brain that makes the alter a fully functional “part” of the core. At this point the alter can expand his or her own personality nondependent on the core. So it is not unreasonable to expect that alters will have similar traits as the core but still have their individual likes and dislikes as well as mannerisms and characteristics.
Many experts have even determined some different physiological traits between alters. Some have noted different eye colors, blood pressure, injuries, as well as more deliberate difference such as hair style, clothing styles, and preferences to jewelry. You may notice different voices, tones, or even accents. This is due to the fact that each alter lives its own life almost completely separate from the others, including the core. It isn’t until problems with coping become an issue and therapy or other treatment is sought by one or more of the alters or the core that each alter will start to become aware of the others. Some multiples have reported knowing about others within their system but they rarely understand that they are in fact alters all sharing the same body.

Amnesiac Barriers

This is because there are amnesiac barriers that separate one alter from another. This makes switching possible and keeps chaos from ensuing. Switching is a term used to describe the emerging of one alter, replacing another. Any alter may be out front controlling the functioning of the body at any given time but it is almost always the one that is best suited for the current situation. A dire situation is not a prerequisite for an alternate personality to be out and in control. Because the core develops this coping mechanism so early in life, alters know this lifestyle and often believe the life being lived is exclusively their own. They want to function out just like anyone else does so they can be out to do the most ordinary tasks and activities.
They each have their own life story to tell. For some that story may be uneventful because not all alters experience abuse, while others may know only abuse. If you understand this, you can also understand how difficult life would be for any one alter as he or she grows into adulthood. If you only knew life full of abuse, you would likely lack some social skills, skills to cope in average situations, and lack some serious developmental skills as well. So what used to be a brilliant coping mechanism that saved the life and mind of the biological being as a child is no longer a working skill as an adult.

Media Representations

From as far back as the 1950’s, there have been motion pictures that depict characters with multiple personalities and though a few were based on true stories or documentary in style, most have been about devious, murdering men who demonstrated alter egos more so than dissociative identities. This characterization of multiplicity is a complete fabrication of a legitimate disorder that serves only to entertain the masses who don’t know any better. I’ll admit myself to finding the entertainment value in such a character but it is because of these portrayals in-part that the disorder continues to get a bad rap in the public eye as well as in the professional field. Most people today still believe they should fear or at least be cautious around a multiple and this could not be farther from the truth.

How Others React

Those living with dissociative identity disorder are used to mimicking the behaviors of those in their environment to a large degree. Because DID is based on a survival mechanism, it stands to reason that these alters would develop whatever behaviors worked best, so it is unlikely you would ever know someone is multiple in your daily dealing with them. Remember that the one best equipped to deal with the current situation is probably going to be the one that is out. Based on what we’ve seen of multiple personalities in motion pictures, there’s really no comparison. These characters seem more likely to mirror the characteristics of those who harmed them as a child than they do the multiple him/herself.
The types of problems that arise may surprise you. As a multiple myself, I can say without hesitation that the biggest problem we deal with is the reactions of other people. Since we continue to operate in a similar function as we did during childhood, the reactions of others can cause switching. When someone reacts to our diagnosis rather than reacting to the alter that is out, this reaction can be seen as threatening, which by design can cause a switch in alters. You could well be talking to Janet about psychology, and when she reveals she is DID, your reaction to her in a fearful or confused manner causes Janet to go and out comes Marcia who can better deal with the uncertainty of your fear and confusion.
This has happened to us a few times. It is also the presumption on our part that others will not be accepting that we tend to be more isolated in general.

Rehearsal

Many typical people role play in their minds about situations they feel might cause apprehension in an effort to evaluate what might be the best course of action or personal behavior before actually engaging in this event. Multiples do this constantly as a survival mechanism.
An example might be needing to go to the grocery store and ask an attendant where to find the canned olives. Most people might just go in and look for it or simply walk up to attendant and ask them without giving it much thought. A multiple will rehearse that encounter in their head or even with other alters to determine if their speech, mannerisms, and behavior will be the best for that situation. Now I realize this is a more benign example but it does still happen this way.
The fear is that if not done correctly, attention might be drawn to us and we will suffer exposure. It’s a bit more harmful than simple embarrassment because of the stigma of not just DID but of mental illness in general. It can turn a simple exchange into a more complex situation much like having a snowball effect.
Once when I had a kidney stone attack, I had to go to the emergency room because at that time, I did not know it was a kidney stone and if you’ve ever had these things, you know how excruciating it can be. While in the waiting room, I was doubled over in pain and crying. A staff member (intern, nurse or some other titled person) asked me what was wrong. In my painful state, I was not able to do the rehearsal that I would normally do to be prepared for such an encounter so I was very honest and told her that I was hurting so bad, I needed to lie down. Being in the waiting room I suppose, they did not want me to do that but the pain was genuinely that bad so I began to argue with the lady a bit explaining that I had to. There was no other way I would be able to tolerate the pain and she began to see me as a combatant.
Before I knew what was really going on, she had called over the police officer/security who proceeded to tell me that I had to sit up or leave the hospital. By this point I could no longer sit up and a switch took place. Poe (our protector) emerged and suddenly with no noticeable pain whatsoever, she stood up erect and told the officer that his behavior was unwarranted because this was a hospital and the amount of pain we were in meant that a humane person would work to give us more comfort not discomfort. The officer accused us of faking our pain and instead, needing psychiatric treatment. He called in more officers who proceeded to draw their weapons and order us to leave the hospital immediately.
This is an example of why a multiple deems it necessary to rehearse encounters with others. When physical or emotional pain is involved, our defenses are low and switch is inevitable. This usually frightens those around us but they fail to realize that this happens because one or more of them has frightened us. In the scenario I just gave you, the only threat was the police officer(s). No alter in our system would have harmed another human being and never has. The actions of those alters that may seem more extreme are all actions that serve to protect the system and get us out of the situation, not perpetuate it or make it worse.

Co-consciousness

One element of DID that is very helpful is the ability to rest while a different alter is out controlling the functioning. Most people would probably be happy to take such a break but only multiples can do this. Some alters can sleep with others are running things. In many ways, following co-consciousness (working together after the alters know about each other), it’s a lot like have a house full of people. Where prior to co-consciousness we all lived more like in an apartment complex, each having their own apartment. I knew I had neighbors but they weren’t my responsibility and I wasn’t theirs. Now that we know about one another, the best we can hope for is each of us having our own internal room in the same house.
Now decisions need to be made the way a family might make them. Considering one another, getting to know what each member wants, and compromising is a regular part of our being. We work as much like an internal family system as possible. This model is credited to Richard C. Schwartz, Ph.D. who developed the Internal Family System based on his belief that all people have an internal family system working in their minds much the same way a family unit might function on the outside. His views were founded in ego states that we all have but the model he developed is especially helpful in understanding the workings of a multiple. We have begun to understand each other and learned to work better as a unit and as individual personalities because of Dr. Schwartz’s inspiration.
So in closing, the next time you think about or meet a multiple, you might better understand that multiples are not people to fear. Maybe they are people to applaud. If not for the ability to dissociate, some of these people might not be alive today. Many people in battle, concentration camps, prisons, or other extreme conditions have become emotionally and mentally beaten down so badly that they have not survived the ordeal. Being able to dissociate allowed us to spread the pain out so no one personality had to take it all. For this I am grateful and will always consider myself blessed.
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