Thursday, March 22, 2012

Acheiria...momma has a dream

Is it really so much to ask? I wish for my son to be able to write with a semblance of ease. Born minus his writing, dominant hand, our family struggles to make this one, simple task feasible! Is that really so much to ask? I cringe in frustration and slight disbelief. Okay, major disbelief that my son be denied such a mundane, necessary function.
Daily, we have been working and figuring on ways to make this happen. The current strategy in the forefront is the new "oppositional post" prosthetic that allows his left palm to hold a pencil.
The next step is to figure out how to affix or secure a writing surface, whether it be a paper affixed to the wall or a dry erase board on the fridge because son lacks....hmmm, doesn't sound right. Younglink has an anomalous arm and it cannot turn at wrist or elbow. Try writing without being able to manipulate your wrist. It is a mighty challenge. Thus, we work on figuring out what type of writing surface we can manipulate upon which Younglink may write with ease. The surface item would be used at home and at school, when he becomes comfortable using little helper at school in front of his classmates. First, we have to brainstorm n that project.
Once that is complete, diligent daily writing will be needed to strengthen the muscles in his little-used left arm. In addition, we have secured another "team member" from the school special ed staff, who will be specifically address Younglinks self-esteem with his helper.
Why are we doing all this? One, my boy needs writing skills to complete homework. Two, he is very much afraid that kids will laugh at him if he uses his prosthetic. Hmmm, you know, he has spent his whole frickin' life being stared at, so I see where he is coming from. Three, writing is a basic life skill, a no-brainier...who would have ever thought it could be this, This extremely complicated!!!Really????
Anyway, Partner and I are committed. We work on this every single day. I hope we are making progress......sigh

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